Prostate Cancer Survivor Narratives & Doctors' Responses
Project Number5R03CA091737-02
Contact PI/Project LeaderBOKHOUR, BARBARA G
Awardee OrganizationBOSTON UNIVERSITY MEDICAL CAMPUS
Description
Abstract Text
DESCRIPTION: (provided by applicant)
Prostate cancer is the most common form of visceral malignancy in men (1),
and its incidence, particularly early stage prostate cancer, has increased
markedly in the past 10 years. Available effective treatment means that most
men will live a long time after treatment. Subsequently, the ranks of
prostate cancer survivors has grown dramatically. Although researchers have
begun to document the often extensive and long term physical complications of
treatment, including urinary, bowel, and sexual dysfunction, the focus on the
psychosocial effects of these physical changes among men with prostate cancer
has been limited. Although much is known about the psychosocial sequelae of
other cancers, particularly breast cancer, very little is know about the
psychosocial impact of male malignancies. In particular, we know little about
how men respond to the diagnosis of prostate cancer and how they adjust to the
sequelae of treatment in the long term: how they live with prostate cancer.
Moreover, physicians who care for these men after treatment do so regularly
for many years, and while they are monitoring the status of the cancer, the
care they provide is almost exclusively counseling. And yet physicians who
care for patients after treatment are likely to know more about patients'
physical symptoms and sequelae than the psychosocial implications of these
sequelae. It may be important to assess whether physicians could make use of
more in-depth psychosocial information when counseling survivors.
In this study we propose to examine men's perceptions of the meaning of early
prostate cancer and its effects on their lives and explore the ways in which
this may inform physician practice when working with these survivors. We will
examine personal transitions associated with diagnosis and treatment for early
prostate cancer, determine how men integrate the physical changes they
experience into the ways in which they experience their daily lives and
examine the impact of prostate cancer on how men see themselves as men.
Further we will examine ways in which physicians might use additional
information provided by men in narratives in their clinical practice.
The study will rely on qualitative methods. We will draw on an existing
database of interviews with men with early prostate cancer and conduct
narrative analyses to examine personal transitions men experience. We will
then conduct focus groups with physicians likely to be caring for men after
treatment for prostate cancer, primary care physicians and urologists, from
two sites (Harvard Vanguard Medical Associates and Boston VA Medical Center).
The focus groups will be semi-structured to elicit physicians' responses to
men's narratives of surviving with prostate cancer. The transcripts of these
focus groups will be analyzed using grounded theory methodology to identify
themes of caring for patients with prostate cancer and identify ways in which
physicians may utilize men's stories for their clinical practice.
Public Health Relevance Statement
Data not available.
NIH Spending Category
No NIH Spending Category available.
Project Terms
behavioral /social science research tagcase historyclinical researchhuman subjectidentityinterviewlong term survivormaleprostate neoplasmspsychological aspect of cancerquality of life
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