Addressing Structural Disparities in Autism Spectrum Disorder through Analysis of Secondary Data (ASD3)
Project Number5R01MH134177-02
Contact PI/Project LeaderZUCKERMAN, KATHARINE ELIZABETH Other PIs
Awardee OrganizationOREGON HEALTH & SCIENCE UNIVERSITY
Description
Abstract Text
PROJECT SUMMARY
Autism Spectrum Disorder (ASD) affects up to 1 in 44 children in the United States, and its prevalence has
increased over the past 10 years. Though early access to autism care improves outcomes, children of color
and children from low-income families access care later and have unmet care needs. Though there is a broad
understanding that contextual factors on the neighborhood, community, and state levels impact autism health
care disparities, these factors are largely unexplored. In this proposed research, we will compile the most
comprehensive and largest autism service use dataset ever, combining Medicaid claims from 16 states with
community-level data from the Child Opportunity Index, as well as state education and health care policy data.
We will use this powerful new data set to uncover modifiable determinants of child autism services use
disparities. Analyses will focus on age of diagnosis as well as medication and behavioral therapy use. Then
we will use findings to bring research to action, by engaging a consensus panel of community and research
experts to suggest data-driven, feasible interventions based on study findings. We will also use our research
to expand the diversity of the autism disparities research field, by sponsoring scholars who are under-
represented in medicine and/or who have health disparities research interests, to use the resulting dataset to
pursue additional data analyses. At the end of this project, we expect to have evidence-informed findings
regarding which children access which services, which contextual factors affect services access, and which
interventions can be deployed to address autism health inequities.
Public Health Relevance Statement
PROJECT NARRATIVE
Autism Spectrum Disorder affects 1 and 44 children, and racial/ethnic disparities profoundly impact access to
care. Though most research has focused on child and family factors, other contextual factors such as
neighborhood, state health policy, and educational system determinants are likely drivers of structural
disparities in care. In this research we propose to identify cross-sector, modifiable determinants of autism
diagnostic and treatment disparities by combining Medicaid data with information on neighborhoods, state
policy, and state educational data, and we will use a stakeholder-engaged consensus panel to turn data into
actionable interventions.
NIH Spending Category
No NIH Spending Category available.
Project Terms
3 year oldAddressAffectAgeAlaska NativeAmerican IndiansAutism diagnosticAutomobile DrivingBehavior TherapyBig DataBlack raceCaringCessation of lifeChildChild health equityChildhoodChronicCommunitiesComplexConsensusDataData AggregationData AnalysesData ScienceData SetDevelopmentDiagnosisDisparityDisparity in diagnosisEarly InterventionEducationEquityEthnic OriginFamilyFamily memberFundingGeneral PopulationGuidelinesHealthHealth Disparities ResearchHealth PolicyHealth ServicesHealth Services AccessibilityHealth systemHealthcareHomeInformation SystemsInterventionKnowledgeMachine LearningMeasuresMedicaidMedicineMethodsNational Institute of Mental HealthNeighborhoodsNursery SchoolsPharmaceutical PreparationsPoliciesPolicy MakerPrevalenceRaceRecommendationResearchResearch PersonnelSchoolsServicesSpecial EducationStrategic PlanningSystemTechniquesUnited StatesUnited States National Institutes of HealthWorkaccess disparitiesadolescent with autism spectrum disorderadult with autism spectrum disorderautism spectrum disorderautistic childrenbasebehavioral healthchild serviceschildren of colorcommunity based servicecontextual factorsdata harmonizationdata qualitydisparity reductionethnic disparityevidence basehealth care disparityhealth equityhealth inequalitiesimprovedimproved outcomeindexingindividuals with autism spectrum disorderinnovationinterestintervention programlife spanlower income familiesprogramspsychopharmacologicracial determinantracial disparityscreeningsecondary analysissocialstructural health determinantstreatment disparitywaiver
No Sub Projects information available for 5R01MH134177-02
Publications
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Outcomes
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