Fostering Ethical Adoption of Artificial Intelligence-Enabled Assistive Robots (AIAR) Grounded in Person-Centered Dementia Care
Project Number1R21EB036448-01
Contact PI/Project LeaderWANG, JING
Awardee OrganizationUNIVERSITY OF NEW HAMPSHIRE
Description
Abstract Text
Project Summary/Abstract
Dementia poses a significant challenge in the US, with one in three older adults living with the
condition. This reality not only incurs staggering healthcare costs, exceeding $345 billion annually, but also
imposes considerable socio-economic and psycho-social burdens on People Living with Dementia (PLWD)
and their 11 million unpaid care partners. In this landscape, AI-assisted robot technology (AIAR) emerges as a
promising solution, offering to enhance care and improve the quality of life for PLWD and their care partners by
enabling them to age safely at home. However, the integration of AIAR into dementia care requires navigating
a complex ethical landscape, especially concerning the preservation of dignity (concerns around
dehumanization) and autonomy (privacy and consent), which interact in the engagement of PLWD in the
continuous decision-making of AIAR assisted care. Current AIAR implementation often marginalizes PLWD in
decision-making processes due to societal perceptions and stigma, which imply that PLWD lacks the capacity
for meaningful decision-making. A care partner's intimate understanding of the PLWD's history, preferences,
and personality is vital for interpreting subtle cues and enhancing communication, especially as cognitive
abilities fluctuate. However, this understanding can also impede autonomy if care partners presume to know
the PLWD's wishes without involving them in the decision-making process, showing the significance of
supporting care partners to learn to engage PLWD in making decisions.
Our study aims to address this issue by aligning AIAR technology with person-centered dementia care (PCC)
through a two-stage approach. Aim 1 (Stage 0): Describe Experiences of PLWD, Care partners, and AIAR
Developers with AIAR Implementation in Everyday Care Context. Adopting in-depth interviews and non-
participant observations guided by our conceptual framework, we will describe the experiences, related ethical
complexities, and decision-making processes associated with AIAR usage. We will also identify features of the
AIAR that both impede and facilitate collaborative decision making. Aim 2 (Stage 1a): Co-Design a Robust
Intervention Protocol with Preliminary Feasibility and Acceptability. We will engage key stakeholders and expert
panels to co-design an ethically informed intervention model that demonstrates preliminary feasibility and
acceptability, setting the stage for subsequent efficacy testing and a pragmatic clinical trial involving PLWD-care
partner dyads and AIAR systems. The intervention model aims to prioritize the dignity and autonomy of PLWD
and enhance collaborative decision-making. The study holds the potential to direct dementia care towards a
future where technology is utilized with respect, integrity, and a profound understanding of human dignity and
autonomy, thereby ensuring the ethical and effective integration of AIAR in dementia care.
Public Health Relevance Statement
Fostering Ethical Adoption of Artificial Intelligence-Enabled Assistive Robots (AIAR)
Grounded in Person-Centered Dementia Care.
Our research addresses a crucial gap in dementia care, where the use of AI-assisted robots
often overlooks the involvement of people living with dementia (PLWD) in the decision-making
processes about their care. This can lead to a sense of dehumanization and a violation of
personal autonomy. Our project aims to revolutionize this approach by developing the first
intervention protocol that centers on person-centered engagement of PLWD in continuous
decision-making, transitioning from a solely efficiency-driven use of technology to the ethical
adoption that enhances the well-being and autonomy of PLWD and their care partners.
NIH Spending Category
No NIH Spending Category available.
Project Terms
AccountingAddressAdoptedAdoptionAdultAgeAlzheimer's DiseaseArtificial IntelligenceCaregiversCaringCollaborationsCommunicationComplexConsentCuesDecision MakingDehumanizationDementiaDiseaseDistressEmerging TechnologiesEnsureEthicistsEthicsFosteringFoundationsFutureGoalsHealth Care CostsHealth TechnologyHomeHome environmentInterventionInterviewLearningModelingMoralsNaturePerceptionPersonal AutonomyPersonal SatisfactionPersonalityPersonsPragmatic clinical trialPrivacyProcessProductivityProtocols documentationQuality of CareQuality of lifeRecording of previous eventsResearchResistanceRightsRoboticsTechnologyTestingTreatment/Psychosocial Effectsacceptability and feasibilityaging in placeassistive robotcare outcomescognitive abilitydementia burdendementia caredesignefficacy testingempowermentexperiencehuman dignityimprovedinsightmarginalized populationmultidisciplinaryolder adultperson centeredpersonalized carepreferencepreservationpsychosocialrobot assistancesocial stigmasocioeconomicstechnology platformtechnology validationtherapy designuser centered design
National Institute of Biomedical Imaging and Bioengineering
CFDA Code
286
DUNS Number
111089470
UEI
GBNGC495XA67
Project Start Date
17-September-2024
Project End Date
31-August-2026
Budget Start Date
17-September-2024
Budget End Date
31-August-2025
Project Funding Information for 2024
Total Funding
$179,449
Direct Costs
$119,700
Indirect Costs
$59,749
Year
Funding IC
FY Total Cost by IC
2024
NIH Office of the Director
$179,449
Year
Funding IC
FY Total Cost by IC
Sub Projects
No Sub Projects information available for 1R21EB036448-01
Publications
Publications are associated with projects, but cannot be identified with any particular year of the project or fiscal year of funding. This is due to the continuous and cumulative nature of knowledge generation across the life of a project and the sometimes long and variable publishing timeline. Similarly, for multi-component projects, publications are associated with the parent core project and not with individual sub-projects.
No Publications available for 1R21EB036448-01
Patents
No Patents information available for 1R21EB036448-01
Outcomes
The Project Outcomes shown here are displayed verbatim as submitted by the Principal Investigator (PI) for this award. Any opinions, findings, and conclusions or recommendations expressed are those of the PI and do not necessarily reflect the views of the National Institutes of Health. NIH has not endorsed the content below.
No Outcomes available for 1R21EB036448-01
Clinical Studies
No Clinical Studies information available for 1R21EB036448-01
News and More
Related News Releases
No news release information available for 1R21EB036448-01
History
No Historical information available for 1R21EB036448-01
Similar Projects
No Similar Projects information available for 1R21EB036448-01