Implementation of Communication Disability Collection and Accommodations in Primary Care Settings
Project Number5R01DC020188-03
Former Number1R01DC020188-01
Contact PI/Project LeaderMORRIS, MEGAN A
Awardee OrganizationUNIVERSITY OF COLORADO DENVER
Description
Abstract Text
PROJECT SUMMARY/ABSTRACT
The Americans with Disability Act (ADA) requires that healthcare organizations and providers ensure that
patients with disabilities receive equal access to healthcare services, facilities and programs. While the ADA
was passed more than 30 years ago, research demonstrates that persons with disabilities continue to
experience significant health and healthcare disparities. Persons with communication disabilities, who
represent >14% of the US population, experience specific challenges to patient-centered communication, an
essential component of high-quality care as outlined by the National Academy of Medicine report “Crossing the
Quality Chasm”.
Documentation of patients’ demographic information (e.g., race/ethnicity, sexual orientation, and gender
identity) and social data (e.g., Social Determinants of Health) in electronic health records (EHR) has been
recognized by healthcare organizations, policy makers and advocates as a necessary step towards advancing
healthcare equity. Unfortunately, most healthcare organizations do not consistently or comprehensively
document patients’ disability status within the EHR. Consistent and accurate documentation of disability status
is needed to track the quality of care delivered to patients with communication disabilities and to identify
patients who need disability accommodations required by the ADA.
This project aims to adapt and evaluate the effects of an implementation support package of strategies to
assist primary care clinics in (1) documenting patients’ communication disability and accommodation needs in
the EHR and (2) providing communication disability accommodations. In Aim 1 we will employ Implementation
Mapping Adapt, which will allow us to review existing literature and build upon what is already known about
implementation of documentation of other demographic data. With a stakeholder panel, we will adapt an
implementation support package for documentation of communication disability status and provision of
communication accommodations in the primary care setting. Our final product will be a multi-component, multi-
level implementation support package designed for use in varying contexts. In Aim 2 and 3, we will conduct a
multi-method, Hybrid Type III effectiveness-implementation trial across 9 clinics in 3 healthcare systems:
UCHealth, Denver Health (a safety net health system), and Northwestern Medicine in Chicago, IL. The primary
care clinics will be diverse (e.g., urban, rural, women’s health, and geriatric clinics) to maximize learnings
across different contexts. Our outcomes will be guided by the PRISM/RE-AIM framework, with our primary
outcomes being the Reach of documentation of patients’ disability status (Aim 2) and the Adoption of provision
of disability accommodations (Aim 3.) The study findings will inform a support package with scalable strategies
that can be adapted and generalized to other types of disabilities.
Public Health Relevance Statement
PROJECT NARRATIVE
Patients with disabilities affecting communication (e.g., hearing, speech, language disabilities) experience
significant disparities in the receipt of high-quality, equitable healthcare services. To understand and address
disparities in care, healthcare organizations need to systematically document patients’ disability status in the
electronic health record and then use that data meaningfully. This project will test implementation strategies to
support primary care practices in (a) systematically documenting patients’ communication disabilities and
needs in the electronic health record, and (b) providing needed disability accommodations, with the
overarching goal of promoting equitable healthcare for individuals with communication disabilities.
NIH Spending Category
No NIH Spending Category available.
Project Terms
AcademyAddressAdoptionAdultAdverse eventAdvocateAffectAmericans with Disabilities ActAppointmentArthritisAsthmaCaringCharacteristicsChicagoChronicClinicClinicalCollectionColoradoCommunicationCommunication BoardCommunication DisabilityCommunitiesDataDiabetes MellitusDisabilities experienceDisability accommodationsDisability statusDisabled PersonsDisparityDocumentationEducational InterventionElderlyElectronic Health RecordEnsureEquitable healthcareEquityEthnic OriginEventGender IdentityGoalsHealthHealth systemHealthcareHealthcare SystemsHearingHearing AidsHospitalizationHybridsHypertensionIndividualInfant MortalityInpatientsIntakeInterventionJusticeLanguageLanguage disabilityLearningLiteratureMapsMaternal MortalityMedicalMedical HistoryMedicineMethodsOutcomePatient CarePatientsPersonsPolicy MakerPopulationPractical Robust Implementation and Sustainability ModelProcessProviderQuality of CareRaceReach, Effectiveness, Adoption, Implementation, and MaintenanceReportingResearchRuralSex OrientationSocial supportSourceSpeechTestingUnited StatesVisitVoiceWomanWomen's HealthWorkcare outcomesdemographicsdesigndisabilityeffectiveness/implementation trialevidence baseexperiencefederal policyhealth care availabilityhealth care disparityhealth care servicehealth care service organizationhealth care settingshealth datahealth disparityhealth equity promotionhealth information technologyimplementation evaluationimplementation outcomesimplementation strategymarginalized populationpatient orientedpatient portalprimary care clinicprimary care practiceprimary care settingprimary outcomeprogramssafety netsocialsocial health determinantswillingness
National Institute on Deafness and Other Communication Disorders
CFDA Code
173
DUNS Number
041096314
UEI
MW8JHK6ZYEX8
Project Start Date
16-September-2022
Project End Date
30-June-2027
Budget Start Date
01-July-2024
Budget End Date
30-June-2025
Project Funding Information for 2024
Total Funding
$765,490
Direct Costs
$555,224
Indirect Costs
$210,266
Year
Funding IC
FY Total Cost by IC
2024
National Institute on Deafness and Other Communication Disorders
$765,490
Year
Funding IC
FY Total Cost by IC
Sub Projects
No Sub Projects information available for 5R01DC020188-03
Publications
Publications are associated with projects, but cannot be identified with any particular year of the project or fiscal year of funding. This is due to the continuous and cumulative nature of knowledge generation across the life of a project and the sometimes long and variable publishing timeline. Similarly, for multi-component projects, publications are associated with the parent core project and not with individual sub-projects.
No Publications available for 5R01DC020188-03
Patents
No Patents information available for 5R01DC020188-03
Outcomes
The Project Outcomes shown here are displayed verbatim as submitted by the Principal Investigator (PI) for this award. Any opinions, findings, and conclusions or recommendations expressed are those of the PI and do not necessarily reflect the views of the National Institutes of Health. NIH has not endorsed the content below.
No Outcomes available for 5R01DC020188-03
Clinical Studies
No Clinical Studies information available for 5R01DC020188-03
News and More
Related News Releases
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History
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Similar Projects
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